Juneteenth Partnership

Coalition for the Humane Treatment of Sickle Cell
(CHTOSC)



Marqus and Francesca Valentine
Marqus and Francesca Valentine sit in their living room in Lisle, Ill. They are training their two dogs to
be service animals to help Marqus with his disabilities caused by sickle cell disease. (Jenny Gold/Kaiser Health News)

KHN (Kaiser Health News)

Sickle Cell Patients, Families And Doctors Face A 'Fight For Everything['
By Jenny Gold     December 27, 2017


Amy Mason
Amy Mason, who has sickle cell disease, at her home in Mobile, Ala.
"Every time, itís a battle," she says of seeking care in the emergency room.

Photo By Sharon Steinmann

STAT

'Every time itís a battle': In excruciating pain,
sickle cell patients are shunted aside

By Sharon Bagley     October 18, 2017
@sxbegle


YOU, ME AND THEM: EXPERIENCING DISCRIMINATION IN AMERICA
NeDina Brocks-Capla
In her San Francisco home, NeDina Brocks-Capla has made a shrine filled
with memories of son Kareem Jones, who died of sickle cell disease in 2013.

Jenny Gold/KHN

NPR

Sickle Cell Patients Endure Discrimination,
Poor Care And Shortened Lives

By Jenny Gold     November 4, 2017



Sickle Cells


GUIDLINES FOR PARTICIPATION IN
JUNETEENTH - WORLD SICKLE CELL DAY - "19th of June"


Sickle Cells



"Stop the deaths of our Sickle Cell Anemia patients with acute and chronic
pain from 'Medical Manslaughter' in Emergency Rooms and Hospitals."


Rev. Ronald V. Myers, Sr., M.D.
Black Doctors Matter (BDM)
American Pain Institute (API)

Nita Thompson
World Sickle Cell Federation (WSCF)


Sickle Cells



* STOP THE ABUSE OF SICKLE CELL PATIENTS BY EMERGENCY ROOM AND HOSPITAL STAFF!

* STOP THE ALARMING INCREASE OF SICKLE CELL PATIENT DEATHS!

* STOP DOCTORS FROM NOT TREATING SICKLE CELL PATIENTS WITH ADEQUATE NARCOTICS
BECAUSE OF THE EXCUSE OF THE FEAR OF LOSING THEIR MEDICAL LICENSES!

* STOP DOCTORS FROM NOT ORDERING APPROPRIATE LAB & DIAGNOSTIC TESTS FOR SICKLE
CELL PATIENTS SEEKING MEDICAL CARE!



A Must See Video!
Video Screen

CHICAGO DOCTORS USE STEM CELLS TO CURE SICKLE CELL DISEASE


Chicago ABC News 7
By Terrell Brown and Christine Tressel
Monday, December 12, 2016


A Must See Video!
Video Screen

NEW SICKLE CELL TREATMENT OFFERS POSSIBLE CURE


Chicago ABC News 7
By Terrell Brown
Monday, September 27, 2017


gene    sickle cell

ADMIN

Doctors reverse teenís sickle cell disease with innovative gene therapy
November 2, 2017


Stem Cell
Artistic rendition of a stem cell



***********************************************


Sickle Cell Disease
WORLD SICKLE CELL FEDERATION


*** Doctors treating sickle cell anemia patients in PAIN CRISES please read: ***

CDC Guideline for Prescribing Opioids for Chronic Pain
(United States, 2016)

According to guideline, for sickle cell use of opioids under scope and audience (** #46 **) CDC says refer to:

National Institute of Health (NIH) 2014 Sickle Cell Treatment Guidelines


In addition, given the challenges of managing the painful complications of sickle cell disease,
readers are referred to the
NIH National Heart, Lung, and Blood Instituteís Evidence Based Management
of Sickle Cell Disease: Expert Panel Report, 2014
.


***********************************************



**** JOIN the CHTOSC! ****


Sickle Cells



CONTACT US!


Nita Thompson
World Sickle Cell Federation (WSCF)
323-620-2050
e-mail: chtosc@gmail.com
web site: www.WorldSickleCellFederation.com



Rev. Ronald V. Myers, Sr., M.D.
Black Doctors Matter (BDM)
National Juneteenth Observance Foundation (NJOF)
662-392-2016
e-mail: JuneteenthDOC@yahoo.com
web sites: www.BlackDoctorsMatter.com
www.NationalJuneteenth.com



Juneteenth Partnership

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